What makes access amazing for you?

I was thinking about event accessibility today and events I’ve been to as a wheelchair user. There are bare minimums of accessibility that mean I can get in the door, and usually that’s what people mean when they tell me their space, or event, is wheelchair accessible. A level entrance, a lift or elevator, maybe some specially marked off seating area. But what makes it not just possible, but a good experience? A great, or amazing experience?

I can list some of those things that kick it up a notch!

Good information. Tell me about all the access needs you have considered, whether they come out accessible for me or not, or you were able to mitigate them or not! Just say it as part of the event announcement. It’s a great jumping off point for me to ask deeper questions.

Level entrance that doesn’t depend on a lift. This is about my feeling of security and confidence. Am I going to encounter one of those hellish, clanky lifts that is locked and no one knows where the key is? Is it going to be broken? Is it going to break while I’m in it and a restaurant full of people are staring at me?!

Spaciousness. There is room to move. I can go into a room, and then freely, without fuss or disruption, get out again! I can sit with my friends, whether they are wheelchair users or not. Tables are far apart. Aisles are wide and not blocked by audio visual equipment or people’s backpacks. More than one or two wheelchair users can be in this space and move around and feel FREE.

Bathroom access. This should be obvious but sadly isn’t. Can I get to a level entrance bathroom? Can I do it without going two buildings over and 9 floors up with a freight elevator in between? If not then I don’t even want to be at your event. Is the path to the bathroom clear or will I have to bulldoze my way down a twisting narrow hallway full of mop buckets?!

Community education and participation. The event organizers or hosts mention things like keeping aisles clear and the community understands the reasons for it!

Reachable food and drinks. It is a downer when there’s a gorgeous buffet for your event but it’s up on a weird little dais that has stairs, or it’s so high up I can’t see it from my wheelchair. Yes, people will help me and get my food but it just feels good to be able to independently browse and decide, at my own pace. I can deal with a bar counter height drink ordering experience, and that’s fine, but it’s always nice if there is a low area too and this becomes more important if you are inviting multiple wheelchair users to your event! Decrease the awkwardness by having some low height counter space.

Some seating for other people. It’s a good idea to have this anyway for walking people who get fatigued, but if you make sure there are at least some chairs, that are moveable, then it also means I can get into a space where I can talk to walkies without craning my neck for hours to look up at them.

Accessible presenter setup. Is there a stage? Am I a presenter? Might I be winning an award ? (I like to think so!) Then please make there be an accessible spot for a presenter, a podium or chair, a microphone, place for me to put a laptop and control slides, in a way that isn’t horrible or annoying. I have crawled on stages, I have been lifted onto stages, and I’ll do it but it’s not a great experience. Conference hotel wants to charge you 10K for ramp onto a stage? Maybe get creative with it and at least make there be a level, alternative presentation setup that doesn’t suck.

There’s probably more, but those are the top ones that come to mind!

Silly songs

Day 3 of DWeb Camp. Judy and I sang our translation of the Free Software Song into Toki Pona (only got through the first verse though…)

o kama poka mi mute o pana
e sitelen pali pi ilo sona
sina mute li ken pali e ale,
jan pi pakala pona o

Then I showed off me and Danny’s Hackernationale and a bunch of us sang it in the geodesic dome! (I need to re-do the syllables which aren’t always correctly under their notes, there)

Then, somehow, we ended up on the floor of the dome collectively writing a filk version of Sweet Caroline, which we then performed in the EFF Lounge at midnight! Here are the lyrics!

Sweet Copyleft
(lyrics by Liz, Leez, and Judy)

Where it began, I can’t begin to knowing
But then I know it’s growing strong
First GPL,
Then came Creative Commons,
Who’d have believed you’d come along
Files, touching files
Reusing them, remixing me, remixing you

Sweet copyleft,
License never felt so good
I’d be inclined
To share everything I could

but now I
look at the net and it don’t seem so lonely
we filled it up with all of us
when i create,
the code flows out my fingers
We make so much when I remix you
nodes touching nodes….
touching nodes, touching nodes, touching nodes

Sweet Copyleft,
license never felt so good!

Earlier in the day I got to play with a Waffletone, which is kinda like a Monome but with mechanical keyboard keys! The github repo is a beautiful and elegant marvel of great documentation!

DWeb Camp Day Zero and One

Day Zero at DWeb Camp. We drove down Highway 1 stopping in Moss Beach to look at a strangely cheap vacant lot to try and figure out what is wrong with it (On the fault line, a weird shape, has a utility pole smack in the center of the tiny property.) Saw a huge hawk in the tree next to the utility pole and then realized I had dropped my car keys somewhere in the tall grass. If we buy this vacant lot and park a derelict trailer on it and build cinderblock library and a tiny house from a kit, I shall name it Keyhawkia. (I never found the keys but Danny had a spare.)

I brought an entirely unnecessary cooler and bag full of food. There is abundant and delicious vegan food 3 times a day! Our glamping tent is comfortable, equipped with a foam mattress, a wooden crate, and a battery powered lantern. I brought a Yeti 150 battery hoping to heat my early morning coffee with it, a solar lantern, a second lantern to charge off the Yeti, my two wheelchair batteries, and about a million different charging cords.

Met a ton of people, passed out some copies of my zine, and helped wash and sanitize some loads of thrift store dishes. Went to bed and as soon as I laid down realized my body was screaming in pain – oh fuck! Vowed to lie down and rest more during the day the rest of the time here.

I was saying to some of the mushroom farm people that, everyone coming here is used to being the person who just does stuff directly and feels super confident and capable of being in charge of whatever, and so we are about to have a physical manifestation of decentralized activity and it will surely be a bit hilarious. (So far, from day 2, definitely true).

Day One. Woke up at 6am, made lukewarm coffee using my Yeti and a car charger travel mug. Sat in zero gravity chair before it was fully open, falling slowly and gently backwards, and actually set the coffee mug down without spilling it AND no one saw me fall over.

Over the afternoon a couple of hundred people arrived. It started to feel festive. The “Mesh Hall” now looks like Noisebridge complete with “sans flaschentaschen”. Lots of discussions of Scuttlebutt and also of Kazakhstan. I love seeing everything take shape.

I pedantically corrected the sign for Shiitake Camp with a sharpie, adding the second “i”. The kerning may bother someone but it wasn’t a bad job of insertion given the spontaneous nature of the action! Danny laughed at me…Guys sitting by the sign somewhat bemused…

Set up my tarp outside the tent so that my wheelchair has shelter from the dew – within 5 minutes I found some pointy iron rods which Bill, who is amazing, told me were foundation rods. People passing by had sledgehammers, extra tent spikes, a hatchet which broke while being dramatically used in exactly the way you should not, so that the sharp end is about to embed itself in your forehead – All was well and my wheelchair is protected from the elements in the night. While I took a short nap, someone (probably James) left me a little roll of cord to tie up the tarp! Miraculous!

I washed more dishes and spent the day mostly loafing. (Under my tarp lean-to.)
Did some crosswords in Portuguese with Seth (I don’t know Portuguese but faked it from knowing Spanish) – relaxing and fun.

Could not hear or see most of the opening circle stuff but some of the talks made it to the outer fringes. At one point I gathered that people were sticking a branch into a fire pit and then saying a word in their language and maybe explaining the word’s significance (to them? to the moment? to their culture?) and I had a saucy suggestion to Danny as to what his special representative British word should be. 10 points if you guess it!

Day Two – The showers are amazing in this upper camp. Huge compared to my bathroom, a handy bench to change on, everything rather beautiful in that people-who-have-spent-years-living-on-communes wood shop way with shelves constructed of sections of tree trunk and attractive large pebbles as decor – Lots of Dr. Bronners soap to share. We had a nice camaraderie in the shower this morning as I complimented someone’s tshirt which said in scrolly print, “Brats push to master” and she then explained it to the people in the bathroom with us (Christie the biologist and her daughter) who were not familiar with version control software or its jokes. (“Good bois push to branches” I guess would be the alternate version.) “I’m blogging this” – my sudden declaration from behind the shower curtain after like 5 solid minutes of explanation of the joke.

My yeti battery heated the travel mug of instant coffee beautifully today. It takes a while. The trick is falling back asleep after plugging it in so that you aren’t waiting tediously for the water to hot up.

Plans for today: set up a little zine making workshop. Get set up with scuttlebutt. go to some discussions or talks. Work on my small text adventure game of this event and then put it up somewhere in the hackitorium room if anyone has a spare computer to display it on.

Notes on some Web4All talks

Back at Web4All, part of The Web Conference. Here’s some notes on talks I liked.

Dragan presented the talk “AudioFunctions.web: Multimodal Exploration of Mathematical Function Graphs” and I also got to see a demo on Monday afternoon. AudioFunctions works in desktop and mobile browsers to show visually impaired users the shape of a function through sound pitch and volume using a touch screen or mouse. As you move around on the graph with mouse or finger (or keyboard with arrow keys) the pitch rises and falls according to the position on the y axis, and the further away from the line you are the softer the tone. And you can double tap for the graph to read out the coordinates. It’s very elegant! I also had a nice time talking with Dragan and his friend Cole from CMU about Ingress, indoor and outdoor navigation apps and maps, Inform7, and other fun stuff.

I caught just a bit of a talk by Lora Aroyo on CrowdTruth, which is a system for annotating information while allowing for ambiguity and disagreement, and had a look at the tutorial. It made me think of the CYC project (which I nearly worked on 30 years ago… but rejected the job offer (with regrets)) – I wonder if they are putting data into CYC now through Mechanical Turk instead of by hiring poets.

A talk called “Addressing the Situational Impairments Encountered by Firefighters through the Design of Alerts”, very interesting to see the design and testing process explained. Though I was annoyed at how this was introduced as being more convincing to designers that they need to pay attention “because firefighters are so rugged and not permanently disabled.”

Another talk on designing and piloting web dev classes for blind/visually impaired screen reader users. Looks like a good project. (opinion…. As so often with these kinds of classes the level of knowledge your students start with is important and you have to spend 90% of the initial time providing background on computers, the internet, programming languages, tools, etc and either you acknowledge that and make it a hella long course, or you end up creating a sort of hothouse dev environment so that students can experience the gratification of publishing something that works)

An interesting trend in some of the talks – use fairly sophisticated analysis to figure out (on the fly) what users might want or are trying to do or what barriers they’re running into based on how they interact with a page. For example it doesn’t matter to the vast majority of users that a site or a browser is infinitely configurable because they are reluctant to change defaults for fear they will break something, so, it works better in most cases to analyze and guess — are they having trouble or going very slowly in clicking links in small elements of the UI? Detect that and serve them a redesigned page with larger UI elements to interact with. (IMHO just design it to be less persnickity in the first place…. but…..ok).

This is an issue near and dear to my heart, or maybe my butt or my feet depending on how you look at it, because my powerchair “guesses” what I might want to (or “should” ) do; when it thinks i am going down a steep slope, it slows to a crawl no matter what I tell it. So, sure, you can guess what i want but give me the capability to override and reprogram it!!! omg.

At lunch one day I talked with Alex Jaimes about the company he works at, DataMinr, and today I hung out with Nathanel who works on RDF data systems and his fiancee whose name I didn’t catch but who works in digital humanities. And also had a nice gossip with Amy Hurst who was at CMU and now teaches HCI at NYU and heads up the Ability Project.

One last note on Chet Cooper’s project for Ability Magazine, Ability Job Fair. Basically this is a super accessible online job fair. Employers pay to list their jobs and for job-seekers it’s free. The next job fair will be on July 25, 2019. I’m interested in this project because I get asked by other disabled people all the time, how to get a job “in tech” and I’d like somewhere to refer them! During the job fair, they have sign language interpreters on-call to assist with live meetings, real time talk to text for people who have difficulty hearing, a system set up to be compatible with JAWS and other screen reader applications, and support for using voice or SMS. Chet was explaining more stuff to me during a coffee break and I got the impression he has a hydra with a lot of heads. There is also Ability Jobs which has job listings (aside from the actual event of the job fair) and some other thing called Ability Corps which is a volunteer org that from the sound of it is trying not to be a sort of charity model of abled-contributor-to-disabled-client, but to actually include disabled people in some kind of mutual aid process and to be enthusiastic about disabled people doing volunteer work in a serious way.

Web Conference

I went to half a day of Web4All, part of The Web Conference. Good talks and demos & I enjoyed meeting people! More after I go to the 2nd day of the conference tomorrow.

Meanwhile – this weekend – I hung up a section of rain gutter alongside the house & planted flowers in it. Too tired to write much. It was very satisfying to figure out how make this strange planter and hang it up properly.

Hot springs here I come!

I’m so excited to go to the hot springs, it’s all I can think about!

I re-read Sorcerer to the Crown recently & The True Queen by Zen Cho & heartily recommend them! They’re so much fun. I hope there will be more!

NOw reading Fifteen Poets of the Aztec World, by Miguel León-Portilla, and some other books – Four Masterworks of American Indian Literature, pretty interesting (the footnotes are where all the action is – I wish the footnotes were on each page instead of at the end of each work.)

What else. I’m pretty brain dead today. Milo is back from his 3 day camping LARP so I’m sure I’ll hear all about that soon! I’m going out for a drink and then plan to read until Danny gets home from LibrePlanet later tonight.

Spent some time looking over this May First stuff. Also reading about Cooperation Jackson.

Visit to the SF Lighthouse

As part of the CripTech symposium I went along on a tour of the Lighthouse for the Blind and Visually Impaired a couple of weeks ago. Chris Downey, an architect who is on their Board of Directors, kindly gave us the tour and the benefit of his insight into the architectural design of the space.

The lobby was designed to feel welcoming to people who might be coming to the Lighthouse for the first time, or really for anyone. It’s a spacious central space in the complex, connecting through a large, open, glass walled stairwell to the floors above and below. It’s possible to hear people talking or laughing from other areas so you are aware of social activity nearby in the space. I was really impressed with the auditory environment, as I really could feel the warmth of “other people are here” without it being distracting or echoing in any way. The walls were lined in some kind of sound baffle type of felt (I think) with a design of wooden slats overlaid that affect the acoustics of the space and are also quite beautiful.

After being there all morning, the street and then the food court we had lunch in were noticeably inhospitable in their acoustics. I realized I felt more relaxed and able to focus while we were on the tour of the building.

There is plenty of natural light, and also bright but not overwhelming overhead lights in long strips going north to south for extra orientation cues for partially sighted people. There were also interesting “light walls” with big glowing panels, and sliding controls which anyone can adjust to play with the color of the light.

stairwell with wall of windows

The flooring is set up so that there are navigable edges for shorelining through the hallways. Travel paths are polished concrete, and seating or other areas are carpeted with metal edges to give more information to cane users about navigating the space. The stairs have distinctive kinds of wood (I think different at the landings so that there is a different sound from a cane tap) and bright but not overly reflective metal edges for high contrast (again, good for people with partial vision).

One especially beautiful touch – the handrails around the stairwell were the softest, silkiest wood with an unusual and nice-feeling shape, slightly concave on the side facing the travel path, and then curved in a slightly irregular way – not a half-circle or half-oval but a more organic feeling shape to fit a hand. If you visit, don’t miss feeling the handrails.

Here’s a picture of Chris demonstrating another thoughtful and elegant touch: the reception area countertops have subtle niches in the edge of the counter to allow a white cane to rest there without slipping to the floor. The photo also shows the wooden acoustic slats that line the wall and the thin metal boundary between concrete travel pathway and carpeted reception area.

Chris Downey

We saw the event rooms, training kitchen, science lab which I think is for making things and doing electronics or computer workshops, and a little maker space with large braille embossing printers and 3-D printers. The art all around the space was really neat, a lot of it from the collection of Donald Sirkin, the guy who left over 100 million dollars to the Lighthouse in his will. There was also a memorial wall talking about Sirkin and his life. (On my to-do list: write a Wikipedia page for Sirkin.)

As a wheelchair user I also noticed the spacious design, since there were several wheelchair users along on the tour we would get into a few narrow hallways, but each time that happened and there was a sort of bottleneck, I was able to go around the circumference of that section of the building and circle back to the “front” of the tour. There were points at each end and at the middle of the building on each floor where the hallways opened up to wider spaces so there were opportunities to regroup and the space didn’t feel claustrophobic. I appreciate not feeling trapped and being able to move freely around a space!

A few years ago I wrote a short text adventure for an unconference space, along with obtaining a tactile map of the interior of the building. It was a simple hack job to give the layout of the rooms. I started thinking through ways to make a much better one for the Lighthouse. So, a textual game where you can walk through a space and develop a feel for its geography and layout. To be done well, this should integrate a holistic impression of the different spaces and how they can be traversed or explored, rather than some straight “visual description” information it would need to include the ways that a space can be experienced by someone blind or with partial vision.

Playing with similar ideas a bit in Inform7, in writing “room” descriptions from the point of view of a wheelchair user, which for me, includes not just an awareness of slopes but of the feel of surfaces and whether they are pleasant (marble is amazing) or jarring (literally). One or two words can indicate that “you” the reader are wheeled. I think that can have an interesting effect on game play. For the Lighthouse, I might try just describing the lobby and a couple of connected rooms as an experiment. Since I am not blind or vision impaired I would need to pair up with someone or do lots of interviewing folks to do this project well if I did it for real! My 4-room experiment of being in a sort of fantasy world game setting, on wheels, gave me a little shiver of recognition to play through, even though I had just written it myself and it was not a surprise be in a garden and then to see the words “You roll into the gazebo.” Yet it was still a surprise, a pleasantly non-alienating one. Is there a word for de-alienating in a healing way, that makes you realize the ways you are alienated (from yourself or from participation or acknowledgement) in default representations? It made me think that representing “you” the player of interactive fiction as disabled along different axes (as living and experiencing reality in particular ways) could be a really powerful game.

Thanks again to Chris and to the Lighthouse and to Karen Nakamura who invited me to CripTech! I particularly enjoyed the tour and am still thinking hard about aesthetics and universal design & how our concept of whose experiences are important affect design & engineering decisions. A beautiful example of technology in action to make a pleasant and functional environment. If we do get a San Francisco Disability Cultural Center someday, I hope it will take the example of the Lighthouse and follow their lead!

Heading over to CripTech

Heading over to the CripTech symposium now. Its full title is: CripTech: Disability and Technology in Japan and the United States – an International Symposium. I spent the morning yesterday with some of the conference speakers as we toured SF Lighthouse.

Technology has the potential to greatly improve access and the full social participation of disabled individuals in Japan and the United States. Both countries have invested considerable sums in these directions, but often this research is being conducted separately from the key stakeholders. This symposium brings together technologists, anthropologists, educators, and other researchers who are working on the nexus of technology, access, and design in Japan together with scholars, engineers, researchers, and activists in the United States for a four-day symposium and workshop in Berkeley, California, the home of the independent living movement. The majority of the participants identify as disabled people.

I’ll be speaking Saturday morning after the showing of Fixed: The Science/Fiction of Human Enhancement, on a panel with Ian Smith and Gregor Wolbring, moderated by Franchesca Spektor.

CripTech-Poster-small

Disability Intersectionality Summit 2018 (Bay Area)

This week I’ve left the house every day. Something to celebrate as I’ve spent a couple of months at home. Saturday, I was SO excited to go to the DIS2018 Bay Area event.

Danny and I took the bus and BART over to the Ed Roberts Center. This was nice in itself for me because I like taking trains – and at the BART station plaza we caught a few songs from the Cuban music group Orquestra de 24. It was hard to tear away from that, but they are there every Saturday. The crowd there was having a lot of fun.

On to describe the event and then some of my thoughts about it!

The Disability & Intersectionality Summit (DIS) is a biennial one-day conference that centers the experiences and knowledge of multiply marginalized disabled people such as, queer disabled people of color, undocumented transgender disabled people, or formerly incarcerated disabled people among others. This conference serves as a platform to highlight the multiple oppressions that shape the lived experiences of disabled individuals, as told by disabled people, in a setting organized by disabled activists. DIS aims to create dialogue on how our society must address systemic oppressions using an intersectional approach.

I missed the morning keynote by Mia Mingus but will watch it later on video. (her talk starts about 21:45)

Makers Faire: I only had a few minutes for this, but I bought stickers and zines from Danchan – beautiful, cute, healing. The messages conveyed by her art are in a way something I have been feeling the lack of, so I was instantly just so happy – this is hard to express. Some of the Stay Home Club things give me a similar feeling but these hit the spot more exactly – to encourage & celebrate love and care from this particular perspective. That it is a radical act to care for ourselves and each other. “Vulnerability” – a person in a hoodie holding their arms in the air with a rainbow above; “Hold Each Other Gently” – hands cupped underneath a box wrapped with caution tape; “Stay Loving Stay Angry” with a dagger through a heart. I also liked (and bought) a flag with a blockprint of a powerchair and “SMASH THE FASH” from FatLibInk folks, and some small prints from Mchhim (I can’t find their info but a sticker that says Your Luxury Is Our Displacement and a flower with the roots exposed).

stickers

At another table I picked up a flyer of Sins Invalid’s Access Suggestions for Mobilizations. Sins Invalid also has a very good Access Suggestions for Public Events. I recommend them both. Maybe your organization or event can’t manage all of these things, but the ones you can, you can explicitly SAY that you are planning to provide, in your event information, invites, announcements, and so on. Making that information easy to find, ahead of time, is an important part of access and inclusivity. At least, by providing the info, you’re signaling very clearly, Less Bullshit Than Usual maybe and that you have thought about & worked towards access. The detailed, granular information you provide is part of the accessibility! Basically when I see simply “Wheelchair accessible venue” on an event description, that’s nice, but one, I can never believe it, and two, it doesn’t describe what I need to know.

I also picked up a beautiful postcard with the cover art for Alice Wong’s upcoming anthology, Resistance and Hope: Essays by Disabled People. “Crip wisdom for the people.

The first afternoon talk was Resistance & Hope: a dialogue Alice Wong & Stacey Milbern – moderated by Robin (@sexabled). While I was kinda hoping for one sort of discussion, we got another, just as good or better.

Alice opened by describing her fear, pain, and anger from the 2016 elections, and how she reacted by wondering what she could do best to foster resistance and hope. Her work for the Disability Visibility Project & for this anthology to be a source of hope in creativity.

Stacey then talked about finding hope in the midst of despair; part of that is in the imagination, imagining and creating ways for us as disabled people to lead resistance. Specifically, for queer/trans/POC disabled folks to lead. For example, within disability activism and communities, we can imagine, what if this movement was led by people with intellectual disabilities, people with mental illness? Once we imagine that, we expand the boundaries of what is possible.

Alice mentioned something I deeply believe, that the people at the margins know the systems they’re in the best. (An idea I first began to understand from Gloria Anzaldua, in the 80s.) In daily lives, we have to fight and resist for so many things, so that something like having plastic straws or riding public transport is part of our resistance. We are struggling to be in public space, as part of our survival.

I appreciated the fun moment where Stacey described Alice as “futuristic”. She said that you can see organizations, non profits, and so on, scrambling to figure out how to use social media. Alice creating the Disability Visibility Project is a good example of using technology effectively – that’s the futuristicness. (Or, think of her with the telepresence robot at the White House!) Consider, from the constraints under which you operate (this is me not Stacey) what you then make happen. To me, that’s part of what it can mean to lead from the margins and why it can be effective. As an important part of that concept, we must challenge the presumed whiteness of disability be centering people of color in the disability justice movement.

Alice responded to Stacey’s talk of being futuristic by saying she likes to think of herself as an alien cyborg. (Darth Vader is a much misunderstood disabled character.)

I hooted appreciatively. Ah, I love them both! And us all! Me too! Cyborg & proud! Alien love! Science fiction is a revolutionary force! Queer feminist cyborg power!! *Explodes from enthusiasm*

Stacey and Alice then turned the discussion to ask the rest of us in the room, What do you resist here in the SF Bay Area? What gives you hope and strength?

I did not always catch who was speaking but did hear, among other things,

* Lily talked about doing the work to create a beloved community
* Brotherhood with neurodivergent men of color who are living on the street, as good resistance work
* Monique talking about struggling with inaccessible bathrooms in the Bay Area and also, that people underestimate the intelligence of others in centers ie, in institutions
* rent
* inaccessible parking
* white supremacy and patriarchy
* categories and labels that block connection to humanity
* ableist public schools
* Sanjay says he resists people who grab him and pray on him in the street and, when ppl say they’re ignorant about disability but they all know someone disabled, they just aren’t listening to or paying attention to their own friends and family
* Reactivity, anger and argumentativeness from someone who says she is trying to educate more patiently on a daily basis
* Academic elitism and snobbery
* Gigi talks about pee in the broken BART elevators and her desire to travel the world. Airlines break our chairs so it’s too risky. Technology and social media give her hope, keep taking pics, report, fight, share.
* Lateef (https://twitter.com/kut2smooth) spoke briefly and passionately about the damage done to us. While I didn’t capture it precisely I had the impression that he had plenty to say that I want to hear. So asked him afterwards for his info – I now see from Lateef’s site that he is a poet too. Poets know! You can buy his book, A Declaration of A Body of Love Poetry – I just did.

I liked how Stacey, Alice, and Robin, Allie taking the mic around, and others, made that space for many people to speak and be heard by everyone in the room. All too brief. Claire made the point at the conference’s closing that this is just a glimpse of each other and we can work over the times to come to make sure we keep in touch and nurture the new connections we’ve made.

Along with others at the DIS2018 Bay Area gathering at the Ed Roberts Center I then watched the closing keynote by Anita Cameron via video streaming from the national event. Anita gave a broad overview of her 33 years working with ADAPT. Kinda 33 years winding up to “How do I bring my full self to this fight?” including blackness, being a woman, a lesbian, all my experiences and identities and anger, to the disability justice movement? The “how” is a long answer too long for a talk. It’s ongoing work, it’s more than having a couple of meetings. It was Mike Brown’s horrible murder in Ferguson that sparked Anita’s re-evaluation of her engagement in ADAPT.

I was thinking from that and previous discussion how hard it is to capture the complexities of these answers. Past the basics, what do we actually do? It is a process of gaining wisdom and experience. We can indicate some ways and truths. We can say things that might sound simple, but hold a world of meaning for your thoughts and actions to explore. Expecting a full explanation in this context is like wanting the content of a person’s life to be poured into your brain. (If only!) This is why we have conversations over time, and novels, and movies, it’s why we have stories, because stories are one of the tools, the main tool, we have for this purpose.

Supporting POC-led events and organizations is super important. For me, it is the logical thing to do. It is often impossible to move an existing organization, or, not impossible, but it is definitely never INSTANT, it’s a long term process. There are many inherent pitfalls in that process (like for example tokenizing people). Personally I will never (again – I did at least once) start an organization run by only or even mostly white people, it just does not work for me, it is too flawed, and I don’t like how that unfolds. At best I think once that happens you can partner with other orgs, in a support role.

While I mention POC led organizations let’s name one, I recall someone referring to it and to Talila Lewis on stage yesterday but not exactly what they said. You might have a look at HEARD. A good organization to support. As you may know, when police in this country kill people, over half of their victims are disabled and they are disproportionately disabled people of color. The violence of the prison system is a perpetual horror and we have to fight it on every level.

Helping Educate to Advance the Rights of the Deaf (HEARD), is an all-volunteer nonprofit organization that promotes equal access to legal system for individuals who are deaf and for people with disabilities. HEARD primarily focuses on correcting and preventing deaf wrongful convictions, ending deaf prisoner abuse, decreasing recidivism rates for deaf returned citizens, and on increasing representation of the deaf in the justice, legal and corrections professions. HEARD created and maintains the only national database of deaf, hard of hearing and deaf-blind detainees & prisoners.

On holding space open. While I appreciated aspects of everything people said in the “discussion” part of the afternoon, I also think white folks might stand to listen more, and help to hold space more, rather than taking that space. We all need space to speak. Do I have plenty to say on these subjects? Yes obviously, LOL. Did I need to speak in that process, no I did not. I have massive privilege and opportunity to say what I have to say. That time is better spent literally listening to whatever the people have to say who have the most difficulty. Even that one weird motherfucker who went on about his spiritual wife. OK man we’re holding space for you to be your own glorious weird-ass self. That is also what it is for. Now, I’m sure everyone has their struggles and maybe it is particularly important to hear from Brother Berkeley McWhiterpants about his allyship in the very middle of an event centered on and run by people of color but…. Come ON. (end mild rant)

So I am left with the thoughts of the concrete actions I am taking (and that I support others in doing) For me a part of that is to look around me for people to connect with in my neighborhood. I talk about mobility issues and other struggles with people I just run into. And, I try to balance my financial support between organizations and individuals, who I know and who are strangers to me (which I think is important, as if you only share resources with the people you are already friends with, that just keeps whatever systemic patterns exist in their same patterns.

The structure of the event at the Ed Roberts Center was interesting in itself.

The stage too was a nice thing, though I would have liked it to be a bit higher, it had a broad ramp integrated with it so that it wasn’t a tedious process for folks to get on and off the stage.

stage with a broad ramp

I liked the MC-ing by Gigi and Claire Light. Claire led some moments of pausing and breathing, something I’m not great at doing, especially in public (because it means listening to my pain instead of blocking it out, and I don’t want to cry or whatever), but I think it was a good thing for many people in the event and a good idea to make space to ground ourselves. There was also a quiet room available. Towards the end of the afternoon I just got on the floor against a wall and laid down to listen and felt zero worry about other people’s opinions of that. (Something I’ve often done when I’m just that much in pain and tired, but don’t want to go home, I’d rather be able to participate, but others are uncomfortable or it breaks various social rules, and yes that’s why some folks have reclining wheelchairs or maybe I’d be better off staying home but, I can get up and down off the floor and it’s RIGHT THERE.)

I immediately had a wild surge of happiness at being in a crowd, without being crowded and trapped. The space itself was arranged in an open way, with tables spaced widely, and plenty of flexible area for use. Within that space and on the nice smooth floors, others were zipping about, I could hear their motors or appreciate the visual nearly silent, quick motion as they (we) rolled around the room. It was like the pleasure of watching swallows in flight. I thought of specific moments like being at Hamilton Pool near Austin, a limestone sinkhole over a large pool of water, with hollowed out, round cliffs, the mud swallow nests clinging to the cliffs 70 feet overhead and the birds darting in complimentary shapes to the arc of the inverted bowl, not acting together as a flock or a swarm, but each in pursuit of their own invisible goals. (Bugs.) Often, in a crowd, like at a conference hall or hotel, I zip around and, especially if the floor is smooth, I feel something of that pleasure of motion. It means having to be mindful of others in a particular way, that ideally includes my modeling of their ability to predict my motion and trust that I am competent. So, it is rare for me to be in a space like that and feel real joy in motion – It has to be open enough and non chaotic enough to allow for our normal motion not to scare people (whether they have good reason or not to startle and freeze or even leap away, as they do). Maybe the Dyke March and its attempts to hold space open between the main banner and the trolley and sound truck for wheelchair users. What I’m winding up to is that I’m often the only wheelybot in group spaces, so it was a specifically embodied pleasure to be not the only one but more than that, to feel so beautifully comfortable in my own erratic orbits alongside others zooming around. It filled me with joy.

Saw so many friends, met new people, haven’t been so excited about being at a conference in a while.

And, final plug for the Disability Visibility Project. Podcasts, a stream of excellent Facebook posts, Twitter chats on #CripTheVote, #CripLit and other topics. Add them right now to your social media of choice and follow along – you will be sure to learn something & have your world expanded.

liz holding smash the fash flag

Trip to Whistler for Mozilla's work week

Our work week hasn’t started yet, but since I got to Whistler early I have had lots of adventures.

First the obligatory nostril-flaring over what it is like to travel with a wheelchair. As we started the trip to Vancouver I had an interesting experience with United Airlines as I tried to persuade them that it was OK for me to fold up my mobility scooter and put it into the overhead bin on the plane. Several gate agents and other people got involved telling me many reasons why this could not, should not, and never has or would happen:

* It would not fit
* It is illegal
* The United Airlines handbook says no
* The battery has to go into the cargo hold
* Electric wheelchairs must go in the cargo hold
* The scooter might fall out and people might be injured
* People need room for their luggage in the overhead bins
* Panic!!

The Air Carrier Access Act of 1986 says,

Assistive devices do not count against any limit on the number of pieces of carry-on baggage. Wheelchairs and other assistive devices have priority for in-cabin storage space over other passengers’ items brought on board at the same airport, if the disabled passenger chooses to preboard.

In short I boarded the airplane, and my partner Danny folded up the scooter and put it in the overhead bin. Then, the pilot came out and told me that he could not allow my battery on board. One of the gate agents had told him that I have a wet cell battery (like a car battery). It is not… it is a lithium ion battery. In fact, airlines do not allow lithium batteries in the cargo hold! The pilot, nicely, did not demand proof it is a lithium battery. He believed me, and everyone backed down.

The reason I am stubborn about this is that I specially have a very portable, foldable electric wheelchair so that I can fold it up and take it with me. Two times in the past few years, I have had my mobility scooters break in the cargo hold of a plane. That made my traveling very difficult! The airlines never reimbursed me for the damage. Another reason is that the baggage handlers may lose the scooter, or bring it to the baggage pickup area rather than to the gate of the plane.

Onward to Whistler! We took a shuttle and I was pleasantly (and in a way, sadly) surprised that the shuttle liason, and the driver, both just treated me like any other human being. What a relief! It is not so hard! This experience is so rare for me that I am going to email the shuttle company to compliment them and their employees.

The driver, Ivan, took us through Vancouver, across a bridge that is a beautiful turquoise color with stone lions at its entrance, and through Stanley Park. I particularly noticed the tiny beautiful harbor or lagoon full of boats as we got off the bridge. Then, we went up Highway 99, or the Sea to Sky Highway, to Squamish and then Whistler.

Sea to sky highway

When I travel to new places I get very excited about the geology and history and all the geography! I love to read about it beforehand or during a trip.

The Sea to Sky Highway was improved in preparation for the Winter Olympics and Paralympics in 2010. Before it was rebuilt it was much twistier with more steeply graded hills and had many bottlenecks where the road was only 2 lanes. I believe it must also have been vulnerable to landslides or flooding or falling rocks in places. As part of this deal the road signs are bilingual in English and Squamish. I read a bit on the way about the ongoing work to revitalize the Squamish language.

The highway goes past Howe Sound, on your left driving up to Squamish. It is a fjord, created by retreated glaciers around 11,000 years ago. Take my geological knowledge with a grain of salt (or a cube of ice) but here is a basic narrative of the history. AT some point it was a shallow sea here but a quite muddy one, not one with much of a coral reef system, and the mountains were an archipelago of island volcanoes. So there are ocean floor sediments around, somewhat metamorphosed; a lot of shale.

There is a little cove near the beginning of the highway with some boats and tumble-down buildings, called Porteau Cove. Interesting history there. Then you will notice a giant building up the side of a hill, the Britannia Mining Museum. That was once the Britannia Mines, producing billions of dollars’ worth of copper, gold, and other metals. The entire hill behind the building is honeycombed with tunnels! While a lot of polluted groundwater has come out of this mine damaging the coast and the bay waters, it was recently plugged with concrete: the Millenium Plug, and that improved water quality a lot, so that shellfish, fish, and marine mammals are returning to the area. The creek also has trout and salmon returning. That’s encouraging!

Then you will see huge granite cliffs and Shannon Falls. The giant monolith made me think of El Capitan in Yosemite. And also of Enchanted Rock, a huge pink granite dome in central Texas. Granite weathers and erodes in very distinctive ways. Once you know them you can recognize a granite landform from far away! I haven’t had a chance to look close up at any rocks on this trip…. Anyway, there is a lot of granite and also basalt or some other igneous extrusive rock. Our shuttle driver told me that there is columnar basalt near by at a place called French Fry Hill.

The mountain is called Stawamus Chief Mountain. Squamish history tells us it was a longhouse turned to stone by the Transformer Brothers. I want to read more about that! Sounds like a good story! Rock climbers love this mountain.

There are some other good stories, I think one about two sisters turned to stone lions. Maybe that is why there are stone lions on the Vancouver bridge.

The rest of the drive brought us up into the snowy mountains! Whistler is only 2000 feet above sea level but the mountains around it are gorgeous!

The “village” where tourists stay is sort of a giant, upscale, outdoor shopping mall with fake streets in a dystopian labyrinth. It is very nice and pretty but it can also feel, well, weird and artificial! I have spent some time wandering around with maps, backtracking a lot when I come to dead ends and stairways. I am also playing Ingress (in the Resistance) so I have another geographical overlay on the map.

Whistler bridge lost lake

On Sunday I got some groceries and went down paved and then gravel trails to Lost Lake. It was about an hour long trip to get there. The lake was beautiful, cold, and full of people sunbathing, having picnics, and swimming. Lots of bikes and hikers. I ran out of battery (nearly), then realized that the lake is next to a parking lot. I got a taxi back to the Whistler Village hotel! Better for me anyway since the hour long scooter trip over gravel just about killed me (I took painkiller halfway there and then was just laid flat with pain anyway.) Too ambitious of an expedition, sadly. I had many thoughts about the things I enjoyed when I was younger (going down every trail, and the hardest trails, and swimming a lot) Now I can think of those memories, and I can look at beautiful things and also read all the information about an area which is enjoyable in a different way. This is just how life is and you will all come to it when you are old. I have this sneak preview…. at 46…. When I am actually old, I will have a lot of practice and will be really good at it. Have you thought about what kind of old person you would like to be, and how you will become that person?

Today I stayed closer to home just going out to Rebagliati Park. This was fabulous since it wasn’t far away, seriously 5 minutes away! It was very peaceful. I sat in a giant Adirondack chair in a flower garden overlooking the river and a covered bridge. Watching the clouds, butterflies, bees, birds, and a bear! And of course hacking the portals (Ingress again). How idyllic! I wish I had remembered to bring my binoculars. I have not found a shop in the Whistler Mall-Village that stocks binoculars. If I find some, I will buy them.

I also went through about 30 bugs tracked for Firefox 39, approved some for uplift, wontfixed others, emailed a lot of people for work, and started the RC build going. Releng was heroic in fixing some issues with the build infrastructure! But, we planned for coverage for all of us. Good planning! I was working Sunday and Monday while everyone else travelled to get here…. Because of our release schedule for Firefox it made good sense for me to get here early. It also helps that I am somewhat rested from the trip!

I went to the conference center, found the room that is the home base for the release management and other platform teams, and got help from a conference center setup guy to lay down blue tape on the floor of the room from the doorway to the back of the room. The tape marks off a corridor to be kept clear, not full of backpacks or people standing and talking in groups, so that everyone can freely get in and out of the room. I hope this works to make the space easy for me to get around in, in my wheelchair, and it will surely benefit other people as well.

Travel lane

At this work week I hope to learn more about what other teams are doing, any cool projects etc, especially in release engineering and in testing and automated tools and to catch up with the Bugzilla team too. And will be talking a bunch about the release process, how we plan and develop new Firefox features, and so on! Looking forward now to the reception and seeing everyone who I see so much online!